Can Early Intervention help your child?

Can Early Intervention help your child?

Times have changed since I was a young child. I remember being dropped off at grandmother’s house and sitting and watching Black and White movies of The Three Stooges on a floor model television in the living room. I remember watching the Price is Right and clapping my hands because I saw the audience do this on TV. Now we have which help children with eye- hand coordination, Leap Frog which helps children read .

As a Social Worker, I am always concerned with the growth and development of my children. I often, compare my kids’ growth to the milestone chart given by the pediatrician to see if my client is developing according to the benchmarks. The questions are, what happens if children are below where they need to be and are there anything parents can do to help? What is Early Intervention? How does it help families? And what happens if a child has a diagnosis as being developmentally delayed at a young age?

kid reading

Early Intervention is an organization which helps children who may have developmental delays. Early Intervention helps infants and toddlers get intervention and services they need to learn within their first three years of life. These skills include cognitive, physical, communication, and self- help. According to Early Intervention Services, they will tailor services to meet the child’s needs which might include the use of technology, Medical Services, Nutrition Services, Occupational and Physical Therapy Services. Early Intervention also helps parents understand the needs of the child as it is not easy raising a child with special needs parents are offered support to help with this challenging concept.

 

Early Intervention Services are generally at the request of parents, and sometimes a referral is made by a Developmental Pediatrician. The assessment service is free of charge. The Family Service Coordinator will explain the processes and ask the parent/ guardian for permission to assess the child. According to Parent Center Hub, “The evaluation group will be made up of qualified people who have different areas of training and experience. Together, they know about children’s speech and language skills, physical abilities, hearing and vision, and other critical areas of development. They know how to work with the kids, even very young ones, to discover if a child has a problem or is developing within normal ranges. Group members may evaluate your child together or individually. As part of the evaluation, the team will observe your child, ask your child to do things, talk to you and your child, and use other methods to gather information. These procedures will help the team find out how your child functions in the five areas of development. ”

When the child has a diagnosis by the child’s pediatrician, or a certified Infant and Toddler Developmental Specialist, the parents should do their research about the child’s’ diagnosis. Getting as much information about the diagnosis which includes how this diagnosis will affect their child future and what other milestones they should be aware of for the child.
Assistive Technology is helpful. There many Smartphone applications as well as any items on the I pad application which help with the education of the child with delays. There is also adaptive equipment from agencies such as Fun and Functional and Zyrobotics which used technology to create switches to turn on computers or sensory items for kids who need sensory stimulation. Technology has come up with ways where a child can use eye gazing to answer the question a computer app has asked them.

It is important for parents to know they are not alone. There are communities which help families understand the child’s diagnosis. There support groups at local and community hospitals, as well meet- up support groups for the parent of children with special needs. It is also helpful for parents to know what is being discussed from the local, state and nationally regarding their child’s diagnosis. Parents and caregivers may also benefit from joining different national associations. Children often benefit from going to support groups with their peers. Parent Support groups become impromptu play dates where children can be with similar children who look and act similar to them. National Associations such as Autism Speaks, National Society of Down Syndrome and much more have resources available on their websites which include information sheets, up to date facts and what is happening on the local and national level.
All in all, Children who are given a diagnosis with a developmental delay can receive early intervention services. The referral process in simple and can lead to other doors such as support groups for parents and caregivers in the local community as well as the national level. Support groups help parents communicate with their peers to express any concerns about being a parent of a special need child.

Are You Afraid of Your Child  Becoming An Adult?

Are You Afraid of Your Child Becoming An Adult?

 

“So what happens when my child turns 18?” “Can you explain guardianship?” As a Social Worker who works primarily with the Intellectual Disabled and Autistic population, I get asked this question on a daily basis.
Here is the dilemma, when an individual who is Intellectual Disabled reaches the age of 18, in the eyes of the law, they are considered an adult.  The word “adult” is a very scary word for parents who have children with Special Needs. Fear settles, and panic rears its ugly head because now parents realize their child can make legal decisions regarding their life. As a result, the role of natural guardians who are usually the parents, could be lost if legal steps are not taken ahead of the 18th birthday.
Why so much planning? Because the parent must realize that in order to assist their adult child with most of the decision making, which include but is not limited to medical, educational, as well financial matters, the law must determine how this will be achieved.
Whether your child has a diagnosis of Profound and Severe to High Functioning Autism, there is always the question of  “What if?”

I will not get tired of saying it over and over, if a parent is considering guardianship, it is best to start early and get educated as much as possible.

In the Tampa Bay area, there is an impressive advocacy group. This group meets periodically. Under the banner of Just Autism No Panic Right, Yadira Calderon has created a forum, a safe place where parents, as well as professionals, come together to discuss pressing issues regarding their Special Need Children. Most importantly, it is a great opportunity to network.

On March 29, the topic discussed was Guardianship and related legal matters. Some  questions asked were, ” Guardianship, do I need it and why?” Who can be a guardian and what is the cost? These, as well as other perplexing questions, were addressed at this forum.  The panelists were parents who have been through the guardianship process as well Attorneys who specialize in guardianship law.
Here is the information in a nutshell.
In the book Planning Ahead, the diagnosis of a disability does not automatically mean that a person needs formal decision-making assistance. Supporting an individual with disabilities and encouraging them to make their own decisions is always encouraged.There are levels to this. What are my options?Guardianship according to the law is defined as being legally responsible for the care of someone who is unable to manage their affairs.Full Guardianship removes all rights relating to both person and property and requires that first be an adjudication of the individual as utterly incapable of handling any personal decisions, money or property.  This act of guardianship takes away the person’s rights.   Full  Guardianship dictates where they can live, to marry, to be employed  This process is can be very expensive, may be considered as a last option as this is the most restrictive and can take a significant amount of time.

Guardian Advocacy
For those individuals who demonstrate they can perform some decision- making tasks then Guardian Advocate maybe a better option. The Guardian advocate is a process for families to obtain guardianship without deeming the individual incompetent. Guardian Advocate is a least restrictive alternative and less expensive as well.There are other legal options such as Power of Attorney, and Representative Payee which are even less restrictive, however, all decisions should be looked at from all angles and should have a person- centered approach.If you are a parent or a professional and need more information regarding guardianship, I have provided links and resources to help. Please ask questions, get educated regarding legal matters and your child.